The Canadian singer talked about the developing physical stiffness caused by the neurological condition in a recent interview with Vogue France.
Dion received her diagnosis in December 2022 and has since stopped touring and avoided the spotlight, though she did make an unexpected cameo at the Grammy Awards in February to a thunderous standing ovation.
"I have not overcome the illness; it remains within me and never will. I'm hoping that scientific study will lead to a miracle and a cure, but for now I just have to learn to live with it. That's me, then, suffering from stiff person syndrome," Dion said to Vogue France.
"I receive physical, verbal, and athletic treatment five days a week. I practice my voice, singing, toes, knees, calves, fingers, and other body parts. I have to stop doubting myself and learn to accept it now. Why me? I used to ask myself at first. How did this come about? How did I get here? Is this my fault?
"I receive physical, verbal, and athletic treatment five days a week. I practice my voice, singing, toes, knees, calves, fingers, and other body parts. I have to stop doubting myself and learn to accept it now. Why me? I used to ask myself at first. How did this come about? How did I get here? Is this my fault?
"I've chosen to work with a medical team with all of my body and soul, from head to toe," she said. My goal is to reach my full potential. I want to see the Eiffel Tower once more.
Dion did, however, clarify that she is currently working on building her strength and has no plans to perform.
I've been telling myself for the past four years that I'm not going back and that I'm not ready. I can't sit here right now and tell you, 'Yes, in four months,'" she remarked.
"I'm not sure... My body will alert me. But I don't want to sit around and wait. Life is morally challenging on a daily basis. It's difficult; I'm working really hard, and tomorrow will be even more difficult. Another day is ahead of us. However, one thing will always exist, and that is the will. It's the ardor. It's the fantasy. It's the willpower.
SOURCE: Variety.com